I cannot... form thoughts. But I must write it. It must be recorded ( Read more... )

If you are with me in person, and I suddenly yell out and fall to my hands and knees and scream, do not be alarmed. Gently help me stand and help me to a soft place to recline. I may be unable to speak properly, and I may be unable to remember certain things. I may lick or bite my lips, I may scratch myself or pull my hair or vocalize oddly. Take ( Read more... )

Call me Courage ( Read more... )

Okay, seizure ( Read more... )

Crazy seizure was crazy. I was in body unable to... to brain. I knew and saw things happening. Couldn't act or react. Felt and saw myself. Rocked back and forth, gripping the arms of my chair and rubbing the leather. Lip rubbing, lip biting. The world was off. I was too hot. I closed my eyes. I saw Serena, my coping mechanism, she was holding me. ( Read more... )

So there was a seizure. It lasted four to five minutes. I am ridiculously discombobulated and typing very slowly. Dysphasia abounds. Typing is easier than talking. Spasticity is violent. Shaking is violent. Burning, stabbing, electrifying, gnawing ( Read more... )

Last night was deeply not fun and very aggravating. I have gotten surprisingly good at typing through the start of seizures and the end of waking from seizures. Facebook is testament. I typed out a whole status post about how I was about to go under. I went under. I came out of it. I typed out a whole status post to say I was okay. I don't actually ( Read more... )

So, yeah. This is something what happens when you combine mild cerebral palsy with moderate fibromyalgia, temporal lobe epilepsy, and overall neurological damage ( Read more... )

Had a complex partial seizure while on the stairs. I was melting until my head touched the carpet of one of the steps. In my brain I was traveling so quickly, with Alicia by my side, that the world was a blur. I was drooling. I couldn't take deep breaths. Everything was spinning. I screamed for Serena, and she wrapped her arms around me and smelled ( Read more... )

And now I am left with a complete sensation of pure exhaustion, a left arm that doesn't want to do anything but curl up limply against my ribs and be a ghost, a left leg that just wants to drag limply and be a ghost, and a head that feels full of sky. It will all fade gradually, and it will be irritating and aggravating while it lasts, but I am ( Read more... )